Educate the public and health care professionals about HD
Parkinson's Disease
American
Parkinson Disease Association
1250 Hylan Blvd. - Suite 4B
Staten Island, Ny 10305
Toll Free: 800.223.2732
Phone: 718.981.8001
Email: info@apdaparkinson.com
National Parkinson Foundation, Inc.
1501 NW 9th Ave
Bob Hope Road
Miami, FL 33136-1494
Toll Free: 1.800.327.4545
Fax: 1.305.548.4403
Email: mailbox@npf.med.miami.edu
The organization supports research; conducts clinical trials; and provides
physical, occupational, speech and neuropsychological therapies. Learn about
Parkinson's disease-related news and events. The online library also holds
publications and articles.
Parkinson's Disease Foundation
710 West 168th Street
New York, NY 10032-9982
Toll Free: 800.457.6676
Phone: 212.923.4700
Email: info@pdf.org
Educational Office (312)733-1893
The Foundation provides information about Parkinson's disease itself as well
as related organizations, research centers and events. You can also read the
latest Parkinson's news or join the online email list.
Parkinson's
Action Network
840 Third Street
Santa Rosa, CA 95404
Toll Free: 800.850.4726
Phone: 707.544.1994
Fax: 707.544.2363
Email: info@parkinsonsaction.org
The Parkinson's Action Network was founded in 1991 with a mission to provide
a voice for the Parkinson's community. Since that time, the Network's
central objective continues to be to promote a level of research support
sufficient to produce effective treatments and a cure.
The StepOver WandŽ
HurryCane Products, Inc.
Email: info@stepover.com
Progressive Supranuclear Palsy
Society for Progressive
Supranuclear Palsy, Inc (SPSP)
(800) 457-4777
Suite 515, Woodholme Medical Building
1838 Greene Tree Rd.
Baltimore, MD 21208
Fax: 410.486.4283
Email: spsp@erols.com
The goal of this website is to bring current information on progressive
supranuclear palsy (PSP) to persons with PSP, their families, and their
caregivers.
Restless Leg Syndrome
Restless Legs Syndrome
Foundation
4410 19th Street NW
Suite 201
Rochester, MN 55901-6635
Phone: 507.287.6465
RLSFoundation@rls.org
The Restless Legs Syndrome Foundation is a nonprofit 501(c)(3) agency that
provides information about RLS; helps develop support groups; supports
research to find better treatments and, eventually, a definitive cure;
educates physicians and patients about RLS; and publishes a quarterly
newsletter known as NightWalkers.
Spasmodic Dysphonia/Torticollis
National
Spasmodic Dysphonia Association (NSDA)
One East Wacker Drive
Suite 2430
Chicago, IL
USA 60601-1905
Phone: 312.755.0198
Toll Free: 800.377.DYST
Fax: 312.803.0138
Email: dystonia@dystonia-foundation.
org
Dedicated to serving the needs of persons affected with dystonia and their
families, the Foundation has grown from a small family-based foundation to a
member-driven organization of close to 25,000 persons.
National
Spasmodic Torticollis Association (NSTA)
(800)-HURTFUL
(714) 378-7837
9920 Talbert Avenue, #233
Fountain Valley, CA 92708
Email: nstamail@aol.com
The National Spasmodic Torticollis Association (NSTA), a California
nonprofit organization, provides support, referrals and information for
patients and family members living with ST. The organization offers a
variety of valuable services.
Tremor
International
Tremor Foundation
7046 W. 105th St
Overland Park, KS 66212-1803
Phone: 913.341.3880
Fax: 913.341.1296
Email: IntTremorFnd@worldnet.att.net
Wilson's Disease
National
Center for the Study of Wilson's Disease (NCSWD)
432 West 58th Street
Suite 614
New York, NY 10019
Phone: 888.638.6928
Fax: 212.523.8708
General Neurological Resources
American Academy of
Neurology
1080 Montreal Avenue
St. Paul, Minnesota 55116
Phone: 651.695.1940
Email: wen@ann.com
Center for Genetic Studies In Inherited Neurological Disorders
Division of Neurology - Box 2900
Bryan Research Building
Duke University Medical Center
Durham, NC 27710
Toll Free: 800.283.4316
Dana Alliance (CharlesA.
Dana Fund)
745 Fifth Avenue
Suite 700,
New York, NY 10151.
Email: :dabiinfo@dana.org
The Charles Dana Foundation / The Dana Alliance for Brain Initiatives
At this site you will find extensive information about the programs,
activities, and publications of the Dana Foundation and the Dana Alliance,
as well as material of interest to any one concerned about brain diseases
and disorders and about innovative reforms that strengthen early education.
National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
Patients, clinicians and scientists can check this site for information on
Alzheimer's as well as other neurological diseases. Browse online
publications and link to other health organizations and governmental
agencies.
The National
Rehabilitation Information Center
Serving the Nation's Disability
Community (NARIC)
1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
301.495.5626 (TT)
Fax:301.562.2401
One of the most information-intensive, yet easy-to-use WWW sites of
rehabilitation and disability information on the Internet. NARIC's
literature collection, which also includes commercially published books,
journal articles, and audiovisuals, averages around 200 new documents per
month. They offer listings of events and organizations as well as facts and
figures.
National
Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: 202.205.8134
TTY: 202.205.9433
(NIDRR) conducts comprehensive and coordinated programs of research and
related activities to maximize the full inclusion, social integration,
employment, and independent living of disabled individuals of all ages.