RESOURCES
Support Groups
Howard County Parkinson's Disease Support Group
When: Meets the 3rd Monday of each month
Time: 7:00PM
Location: Parkinson's & Movement Disorders Center of Maryland
8180 Lark Brown Road, #101, Elkridge, MD 21075
Contact Kathleen Dougherty, 301-490-1118 or
Dr. Grill as medical advisor attends all meetings.
Central Maryland Essential Tremor Support Group
When: Meets On Fridays (contact Peter Muller for meeting dates)
Time: 10:00AM - 12:00PM
Location: Wellness Center in Columbia
Affiliated with the International Essential Tremor Foundation
Contact Peter Muller IETF Community Ambassador 703-543-8131
YOUNG ONSET and Newly Diagnosed Parkinson's Disease Support Group
When: Meets the 1st Saturday of each month (Sept 24, Oct 1, Dec 3 2016)
Time: 10:30AM - Noon
Location: Wellness Center at Medical Pavillion at Howard Countyin Columbia
10710 Charter Drive, #100, Columbia, Maryland 21044
Contact Deborah Bergstrom 301-712-5381,
Care Partner Parkinson's Disease Support Group
When: Meets 2nd Tuesday of each month
Time: 10AM-12 noon
Where: Vantage House
5400 Vantage Point Rd, Columbia, MD 21044
Contact: Lynada Johnson 410-992-1120 or
Greater Washington DC Dystonia Support Group
of the Dystonia Medical Research Foundation
When: Meetings are held quarterly, contact for dates & times
Location: Holy Cross Hospital
1500 Forest Glen Rd, Silver Spring
Coordinator: Sally Presti 301-627-1657,
Assistant Coordinator: Shidfar Shahriary 301-948-5261
Medical Advisor: Dr. Stephen Grill 443-755-0030,
Dr. Grill attends all meetings
Baltimore Parkinson's Caregiver Support Group
When: Meets the 1st Thursday of every month
Time: 10AM-12Noon
Location: Johns Hopkins at Green Spring Station
10753 Fall Road, Pavillion II - 1st floor conference rm,(thru cafe)
Contact Becky Dunlop, RN, BSN, 410-955-8795
Baltimore County Parkinson's Disease Support Group
When: Meets the 1st Thursday of each month
Time 6:00PM - 7:00PM
Location: Johns Hopkins at Green Spring Station
10753 Falls Road, Foxleigh Room 101
Contact Becky Dunlop, RN, 410-955-8795
Leisure World Parkinson's Support Group
When: Meets the 2nd Tuesday of each month
Time: 3:00PM
Location: Leisure World
3701 Rossmoor Blvd
Silver Spring, MD 20906
Contact: Babs Koch, 301-598-7840
Ataxia
National Ataxia Foundation (NAF)
2600 Fernbrook Lane - Suite 119
Minneapolis, MN 55447
Phone: 763.553.0020
Email: naf@ataxia.org
Movement Disorder Resources
Benign Essential Belpharospasm
Benign Essential Belpharospasm Research Foundation, Inc. (EBRF)
P.O. Box 12468
Beaumont, TX 77726-2468
Phone: 409.832.0890
Email: bebrf@ih200.net
Dystonia
Dystonia Medical Research Foundation (DMRF)
One East Wacker Drive #2430
Chicago, IL 60601-2001
Toll Free: 800.377.DYST
Phone: 312.755.0198
Email:
Huntington's Disease
Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
Phone: 212.242.1968
Toll Free HD Information Line: 1.800.345.HDSA
Email:hdsainfo@hdsa.org
Wilson's Disease
National Center for the Study of Wilson's Disease (NCSWD)
432 West 58th Street
Suite 614
New York, NY 10019
Phone: 888.638.6928
Fax: 212.523.8708