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RESOURCES

Support Groups

 

Howard County Parkinson's Disease Support Group 
When: Meets the 1st Monday of each month on Zoom

Time: 7:00PM
Location: Parkinson's & Movement Disorders Center of Maryland 
8180 Lark Brown Road, #101, Elkridge, MD 21075 
Contact Ladonna Rader, ladonna624@aol.com

Dr. Grill as medical advisor attends all meetings.

Zoom Link: https://us02web.zoom.us/j/84429913091

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Central Maryland Essential Tremor Support Group 
When: Meets On Fridays (contact Peter Muller for meeting dates)

Time: 10:00AM - 12:00PM 
Location: Wellness Center in Columbia
Affiliated with the International Essential Tremor Foundation 
Contact Peter Muller IETF Community Ambassador 703-543-8131 hopenet12@gmail.com

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Young Onset and Newly Diagnosed Parkinson's Disease Support Group 

When: Meets the 2nd Saturday of each month (May vary)

Time: 10:30AM - Noon

Residences at Vantage Point
5400 Vantage Point Rd,  Columbia, Maryland 21044
Contact Tom Molineaux 301-383-0848 or (c) 301-4120-065 , tmolinx@comcast.net

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Care Partner Parkinson's Disease Support Group

When: Meets 2nd Monday of each month

Time: 10AM-11:30AM

Where: Evergreens Senior Living

10101 Governer Warfield PKWY, Columbia, MD 21044

Contact: Melanie Pinkert 240-535-5821 or melanie.pinkert@gmail.com

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Greater Washington DC Dystonia Support Group
of the Dystonia Medical Research Foundation 
When: Meetings are held quarterly, contact for dates & times
Location: Holy Cross Hospital 
1500 Forest Glen Rd, Silver Spring 
Coordinator: Hunter Webster, uhwebster@verizon.net, 703-868-7649
Assistant Coordinator: Shidfar Shahriary 301-948-5261 shidfar@comcast.net 
Medical Advisor: Dr. Stephen Grill 443-755-0030, sgrill1@jhmi.edu 

Dr. Grill attends all meetings

 

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Movement Disorder Resources

Ataxia

National Ataxia Foundation (NAF)
2600 Fernbrook Lane - Suite 119
Minneapolis, MN 55447
Phone: 763.553.0020
Email: naf@ataxia.org

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Benign Essential Belpharospasm

Benign Essential Belpharospasm Research Foundation, Inc. (EBRF)
P.O. Box 12468
Beaumont, TX 77726-2468
Phone: 409.832.0890
Email: bebrf@ih200.net

Dystonia

Dystonia Medical Research Foundation (DMRF)
One East Wacker Drive #2430
Chicago, IL 60601-2001
Toll Free: 800.377.DYST
Phone: 312.755.0198
Email: dystonia@dystonia-foundation.org

Huntington's Disease

Huntington's Disease Society of America 
158 West 29th Street, 7th Floor
New York, NY 10001-5300
Phone: 212.242.1968
Toll Free HD Information Line: 1.800.345.HDSA
Email:hdsainfo@hdsa.org

Wilson's Disease

National Center for the Study of Wilson's Disease (NCSWD)
432 West 58th Street
Suite 614
New York, NY 10019
Phone: 888.638.6928
Fax: 212.523.8708 

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